We're heading to Boston to see Dr. Buie. I'm trying not to expect too much. We saw him a couple of years ago and have been following up with phone consults. He seems to be able to work wonders with other kids but refers to Becca as a "hard case." At least he tries. We know we're not getting any answers from anyone at CHOP. Their GI department is a joke. Wait five months for an appointment, get a prescription for Zantac. They completely botched an endoscopy and Dr. Buie had to do the whole procedure over again.
Becca's pediatrician says she's probably going to be one of those kids that always falls into the "we don't know" category. Comforting words from a pediatrician. At least she's honest. It's getting kind of frustrating. The neurologist says the MRI is "inconclusive." The endocrinologist says some hormones are elevated, but "we don't know what that means and there's nothing we can do about it." The metabolic specialist says something is "not right" but she can't put her finger on it. Not exactly helpful, but at least they weren't insinuating that I'm imagining all these issues. We've been down that road before.
So it's off to Dr. Buie today, and in May we see Dr. Rossignol. Wish I'd made that appointment years ago. Somebody out there has to have some answers. I have to believe that.
Rhema… on the best therapy
1 month ago